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Why We Need a New Social Contract for Data in Healthcare
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Why We Need a New Social Contract for Data in Healthcare

Peter Mills and Jennifer Miller
World Economic Forum, 2019
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Imagine a medical researcher trying to understand the myriad factors – socio-economic, previous conditions, progression of lab results over time – that indicate, contribute to or cure disease. Previously, amassing the necessary amount of data would have been near impossible. Now, big bio-data dwells among us, but there are still obstacles standing between researchers and the massive amounts of information needed to reach the health care breakthroughs on the horizon. In this World Economic Forum report, bioethics experts Peter Mills and Jennifer Miller discuss medical data.

Take-Aways

  • Data science innovations have opened up new horizons for medical research, but there are obstacles to accessing the data needed.
  • The traditional division between research and health care leaves that health information locked up in private health care or research institutions.
  • The public is generally suspicious of sharing health care data, perhaps because of past misuse.

About the Authors

Peter Mills is the assistant director of Nuffield Council on Bioethics. Jennifer Miller is the founder and president of Bioethics International.

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